We’re growing, and our name is too! “Face Facts” is now officially The Facial Pain Advocacy Alliance, the world’s only patient-led 501(c)3 nonprofit dedicated to serving the chronic facial pain community. FPAA is a collaborative effort of chronic facial pain patients and patient groups to empower each other with unbiased facts, and to provide anyone who is not versed in chronic facial pain a one stop resource to aid in early intervention.
“Face Facts” will continue to be the website you have come to know and love as a continuously updated website featuring the most comprehensive information available on all forms of primary and secondary chronic facial pain conditions.
There are many conditions that fall under the umbrella of chronic facial pain. Distinguishing these conditions from one another is essential for accurate diagnosis and early intervention with the proper treatments. For this reason, we cover all of the major chronic facial pain conditions – the cranial neuralgias and the trigeminal autonomic cephalgias.
It is our mission help provide patients a clear path forward. This website features a full work up of each primary and secondary disorder, original articles updated regularly, and a database of currently available resources. We also house a section dedicated to support groups worldwide, arranged by country, language, and specific condition; and filtered by subtopic.
Our long term vision includes too many initiatives and projects to list. All on behalf of chronic facial pain patients everywhere.
We Need Your Help
We are not a brick and mortar organization. We are chronic facial pain patients, just like yourselves. Because we are not tied down to an office building and the expenses that involves (rent/mortgage, repairs, upkeep, staffing, security, furniture, hardware, utilities, etc.) our financial needs are considerably smaller than organizations residing in an actual office. Additionally, for the foreseeable future all Facial Pain Advocacy Alliance contributors will be volunteers, thus freeing us of the expense of paying salaries.
Your donations, instead of being used to feed our overhead or pay large CEO salaries, will go directly to absolute necessities, which include:
- hosting the Face Facts website and email addresses
- maintaining the website with licensed and original media
- maintaining an active and relevant blog
- researching new facial pain treatment developments
There are minimal expenses beyond these three and we promise total transparency and full disclosure of our finances. Always.
Because we are a 501(c)3 nonprofit, recognized by the US Department of the Treasury, your donations are completely tax deductible.
Facial Pain Advocacy Alliance members and contributors
- Erika Conrad-Wess – founding member and Editor in Chief
- Richard “Red” Lawhern, PhD – member columnist
- Susan Dawson – member columnist