TRIGEMINAL NEURALGIA AWARENESS DAY

Today is the FIFTH Annual International Trigeminal Neuralgia Awareness Day! The first Trigeminal Neuralgia Awareness Day happened in 2013, christened by Toni Saunders of TNnME. On this day, we work to raise the profile of TN in our social media circles. Many people fundraise for facial pain causes by designing and selling graphic tshirts andContinue reading

Awareness and Why It Matters: Diagnosis and Earlier Intervention

Since it is Facial Pain Awareness Month, it seems especially appropriate to discuss the merits of raising awareness in the first place. You may ask: What difference does it make, really? Does it matter if our friends on Facebook see that we have facial pain conditions? Is it really necessary to turn our social mediaContinue reading Awareness and Why It Matters: Diagnosis and Earlier Intervention

H.R. Hudson

Public Figures with Facial Pain: Hardcore Punk Singer H.R. Hudson

It’s a bitter irony that the public figure with facial pain in this post is H.R. Hudson, the singer and front man of the hardcore punk band called Bad Brains. I’m going to be perfectly honest. I hesitated to post about this at all because it is a swirling mess of misinformation. Normally, articles about people with facialContinue reading Public Figures with Facial Pain: Hardcore Punk Singer H.R. Hudson

Breakthrough: 3D Printing Cranial Nerves

The emerging technology of 3D printing stands to greatly enhance a facial pain patient’s medical journey by improving accurate imaging of cranial nerves. Currently, a patient seeking surgical intervention for cranial nerve pain relies upon his neurosurgeon’s expertise in radiologically identifying nerve compressions. This is the foundation upon which he will base his decision as to whether orContinue reading Breakthrough: 3D Printing Cranial Nerves

When chronic facial pain isn’t TN

There are many different chronic facial pain diagnoses besides trigeminal neuralgia, and they do not all respond to the same treatments. Accurate diagnosis of chronic facial pain is critical to effective pain management. So, if your facial pain isn’t TN, what is it? It could be a trigeminal autonomic cephalgia (TAC) known as cluster headache. The pain ofContinue reading When chronic facial pain isn’t TN

invisible disabilities

“Invisible Disabilities” Still Widely Dismissed

“The term invisible disabilities refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunctions, brain injuries, learning differences and mental health disorders, as well as hearing and vision impairments.  These are not always obvious to the onlooker, but can sometimes or always limit daily activities, range from mild challenges to severe limitations and vary from person to person.”1 (emphasis added) Back in 1989, BeaContinue reading “Invisible Disabilities” Still Widely Dismissed